Beautiful Saturday in store with temps in the low to mid 70sNaples falls to Jones in state semifinals
Beautiful Saturday in store with temps in the low to mid 70s The Weather Authority says it will be another beautiful weekend across Southwest Florida.
ORLANDO Naples falls to Jones in state semifinals One win stood in between the Golden Eagles and a trip to the state title as Naples competed in its 12th state semifinal.
ESTERO 1 dead after crashing into tree in Estero According to the Florida Highway Patrol, one person is dead after crashing into a tree in Estero on Friday night.
IMMOKALEE 1 dead after hit-and-run crash in Immokalee Authorities are investigating a fatal hit-and-run crash that occurred Friday night in Immokalee.
NAPLES Vigil held for teen shot and killed at Collier party Family, friends and loved ones gathered at a candlelight vigil to remember and honor the life of 18-year-old D’eisha Arthur.
FORT MYERS Florida Gulf Coast University holds “Night at the Nest” fundraiser FGCU is holding its “Night at the Nest” fundraiser and gala on Friday. The money raised will go toward university scholarships.
PUNTA GORDA Punta Gorda Veterans Village helping veterans during the holidays Residents and businesses at the Punta Gorda Veterans Village are stepping up to make military transitions a little easier this holiday season.
NORTH PORT Family pushes for class action against Heritage Insurance A North Port family is battling against Heritage Insurance over the damage Hurricane Ian did to their home.
Trails End Drive suspected double murder hit man and organizers back in court There are new developments in the murder-for-hire case that made headlines for weeks at the start of the year. The defendants are back in court.
CAPE CORAL 4 arrested on drug-related charges after FBI investigation Some Cape Coral residents woke up in the early morning hours to their neighbors’ homes being raided by federal agents.
Hope Card program protects victims of domestic violence in Lee County Lee County has implemented the Hope Card Program, a new statewide initiative to help victims of domestic violence.
SANIBEL 36th annual Sanibel Luminary Festival begins The Luminary Festival kicked off on Sanibel Island on Friday. This community-wide holiday event puts residents and visitors in the holiday spirit.
FORT MYERS Future unsure for Rachel at the Well During Hurricane Ian, Rachel at the well was uprooted from its spot in front of the Edison Park neighborhood.
NAPLES Naples Yacht Club appoints first woman commodore After 78 years, the Naples Yacht Club has appointed its first woman commodore. Kathy Parks King is her name.
Beautiful Saturday in store with temps in the low to mid 70s The Weather Authority says it will be another beautiful weekend across Southwest Florida.
ORLANDO Naples falls to Jones in state semifinals One win stood in between the Golden Eagles and a trip to the state title as Naples competed in its 12th state semifinal.
ESTERO 1 dead after crashing into tree in Estero According to the Florida Highway Patrol, one person is dead after crashing into a tree in Estero on Friday night.
IMMOKALEE 1 dead after hit-and-run crash in Immokalee Authorities are investigating a fatal hit-and-run crash that occurred Friday night in Immokalee.
NAPLES Vigil held for teen shot and killed at Collier party Family, friends and loved ones gathered at a candlelight vigil to remember and honor the life of 18-year-old D’eisha Arthur.
FORT MYERS Florida Gulf Coast University holds “Night at the Nest” fundraiser FGCU is holding its “Night at the Nest” fundraiser and gala on Friday. The money raised will go toward university scholarships.
PUNTA GORDA Punta Gorda Veterans Village helping veterans during the holidays Residents and businesses at the Punta Gorda Veterans Village are stepping up to make military transitions a little easier this holiday season.
NORTH PORT Family pushes for class action against Heritage Insurance A North Port family is battling against Heritage Insurance over the damage Hurricane Ian did to their home.
Trails End Drive suspected double murder hit man and organizers back in court There are new developments in the murder-for-hire case that made headlines for weeks at the start of the year. The defendants are back in court.
CAPE CORAL 4 arrested on drug-related charges after FBI investigation Some Cape Coral residents woke up in the early morning hours to their neighbors’ homes being raided by federal agents.
Hope Card program protects victims of domestic violence in Lee County Lee County has implemented the Hope Card Program, a new statewide initiative to help victims of domestic violence.
SANIBEL 36th annual Sanibel Luminary Festival begins The Luminary Festival kicked off on Sanibel Island on Friday. This community-wide holiday event puts residents and visitors in the holiday spirit.
FORT MYERS Future unsure for Rachel at the Well During Hurricane Ian, Rachel at the well was uprooted from its spot in front of the Edison Park neighborhood.
NAPLES Naples Yacht Club appoints first woman commodore After 78 years, the Naples Yacht Club has appointed its first woman commodore. Kathy Parks King is her name.
A mandatory newborn screening test at birth revealed Cinch Wight had spinal muscular atrophy – or SMA. (Credit: Ivanhoe Newswire) Gene replacement therapy: It’s a game-changer when it comes to treating life-threatening illnesses. It can replace disease-causing genes with healthy genes, knock out a gene that’s not working right, or add a new gene to the body to help fight disease. To date, the FDA has approved four types of gene therapy including one that was given the OK just in time to save one little boy’s life. No doubt about it, Cinch Wight is going to be a cowboy just like his dad. “He loves the dog and the horses and the cows,” shared Cinch’s dad, Alex Wight. But it has been a wild ride for this young bronco. A mandatory newborn screening test at birth revealed Cinch had spinal muscular atrophy – or SMA. Cinch’s mom, Amber Wight recalled, “That was the first time I’d ever even heard the term and what it was. And so, it was very scary.” A neuromuscular disorder that can paralyze a baby in the first few weeks of life. “My first thought was, he’s never going to be able to ride broncs or anything like that,” expressed Alex. But just one day after Cinch was born, the FDA approved a new gene therapy. “We were pretty excited to get a phone call from the department of health, you know, and have this baby here who we can use this treatment on after its approval,” explained Russell Butterfield, MD, pediatric neurologist at University of Utah Health and Intermountain Primary Children’s Hospital. A critical gene in little Cinch was missing. Pediatric neurologist Russell Butterfield used an infusion to deliver a virus carrying a new copy of the gene into Cinch’s nerve cells. “It’s like a delivery truck to deliver genes to where you want them to go. What that does do, is it stops the disease right where it is,” elaborated Dr. Butterfield. Just a few years ago, most children born with SMA didn’t make it to their second birthday. Now? “The hardest is holding a baby in one hand and holding that drug in the other and really feeling the weight of that. And understanding that how different this child’s life will be with his new medicine,” expressed Dr. Butterfield. It took a lot of courage for this family to get this far. That’s why Alex wrote a book for his son. A true story about how real cowboys never give up. “I wanted to let him know that no matter how hard it gets, as long as he keeps going, he’ll be all right,” shared Alex. Doctors don’t know if the one-time infusion will last a lifetime or will have to be repeated and there could be a possible risk of inflammation to the liver that doctors will closely monitor. The gene replacement therapy costs 2.1 million dollars. Insurance paid for most of it, but Alex hopes sales from his children’s book will help pay the rest. You can find the book, “A Cowboy and His Horse”, at https://www.amazon.com/COWBOY-HIS-HORSE-ALEX-WIGHT/dp/B08CWG46ZX. Contributors to this news report include Cyndy McGrath, Executive Producer; Marsha Lewis, Field Producer; Rusty Reed, Videographer; Roque Correa, Editor.